Gigi Turns 17 Today!!!
As many of you know, I post this note every year on March 9th.To see previous versions of this note see the links at the bottom of the page. They’re also posted to my Medium.com page.
Today, Abigail (or Gigi as we all call her) turns SEVENTEEN. What? Gigi’s now 17…crazy!
Those of you, who went along for the roller coaster ride that was Gigi’s birth, and 4-month exhausting NICU experience, know how monumental every birthday is for our little princess. If you’ve read this note before, I haven’t changed much, so skip down to near the end to read the latest and greatest. For those that haven’t heard this story, let me start there.
Gigi was born at 3am on March 9th, 2005. I was actually out of town, and got the first call at about 2am Florida time telling me that Vickey was having a miscarriage. She was bleeding at only 23 weeks.
When she arrived at the hospital, the doctors checked her out and knew two things. Gigi was still alive, albeit barely, and time was of the essence. Vickey had a placental abruption (where the placenta separates from the uterine wall). She was hemorrhaging and Gigi was not getting any oxygen. After an emergency c-section, the doctors resuscitated our little girl got her heart beating again and breathing (with the help of a respirator). Abigail weighed in at 1lb. 7oz and was 11 inches long. My wedding ring could go all the way to her elbow.
The neonatologist warned that too long on the respirator would weaken her barely formed lungs to the point of no return. After trying numerous medications and techniques, the situation looked bleak. The doctor acknowledged they would continue to try another round of medications for a 3rd time, but in his nearly 20 years of experience, none had survived after the first two rounds with little to no progress. About 3 hours later, the doctor came to me, teary eyed, shocked that the 3rd time was the charm. We saw for the first time the fight in our Gigi.
About 3 hours later, the doctor came to me, teary eyed, shocked that the 3rd time was the charm. We saw for the first time the fight in our Gigi.
To go through every detail of the next four months would require a novel. Basically every chapter in prematurity and what things could go wrong happened with Abigail. The first blow came a week after Abigail was born. Abigail got a helicopter ride to the larger NICU in Fort Worth because her intestines perforated. Again she was not rebounding from the numerous medications and fluids being pumped into her. At the end of that night, the doctors were advising us to pull the plug.
We didn’t.
For several weeks, we were consistently told she likely wouldn’t survive. She had nearly a dozen surgeries during her first two months in the NICU. She got better, then sick again. She went on ECMO (look it up…scary). She almost lost her eyesight.
Throughout, we were told she may never walk, talk, eat on her own, etc. In January of 2007, she was diagnosed with Cerebral Palsy, and we learned she had virtually no cerebellum.
Today, she’s SEVENTEEN and for anyone who has a teenage daughter…I’m sure you can relate. She talks with attitude. She plays with attitude. She knows how to run her iPad and play video games better than most adults. She continues to have a growing taste for music, including musicals. She can not only recite most songs from many musicals, but she can also tell you which actress sings each song. She will talk about Bruno. She is, in many ways, like any other 17 year old young woman, though I’m not sure where she got all the stubbornness from — must be Vickey. That said, through exhaustive therapies and complex, costly contraptions, Abigail is still unable to walk.
She’s continues to hold the princess title within the Wilson home. Even her brothers are often unable to resist her gentle, sweet way of asking for help (ok, not always that sweet). Her two favorite furry friends, Bosa and Tucker will often compete for the best spot on the bed at night.
It’s not all perfect, though. As any parent of a special needs child will tell you, this life is full of contradictions. Every day you appreciate how blessed you are to have such a beautiful, unique miracle. Yet, at the same time you have the sharp realization that that same uniqueness carries lost dreams with it as well. The has been even more the reality through the couple of years. As with everyone, COVID-19 has impacted Abigail’s routine in ways that many can relate, but also in ways that are very specific to her.
I’ve discussed that Abigail has made friends. She made most of her friends through church. However, since the pandemic we stopped attending church. Now we could return, but we haven’t. Partly because we know that many of her friends and teachers have advanced beyond “kids” church, moved out of our neighborhood entirely, or like us, simply stopped attending. She continues to pray that the coronavirus will go away, but more so that her friends and teachers will all come back too, so she can see them again.
Truthfully, Abigail’s social and cognitive bearings are regressed in many ways. Her ability to interact with girls the same age is challenging. She wants to connect with them, but she often does not know how. With quarantine and an inability to effectively use social media or other online engagement, her connections with many friends ceased. Many have experienced the loneliness and isolation that came with Covid, but Abigail has a very difficult time understanding the why or the fact that the world did not stop during our nearly two years of quarantine. Her friends have grown. Her friends have made new friends. Her friends do not relate to her the same way they did in March 2020.
You may recall last year I told you of the faith and perseverance she had regarding an iPad game that suddenly became unavailable. After praying for 259 nights (yes, we counted), she prayed that the game would return, and IT DID!
This year she felt compelled to reach out to Olivia Olson, one of her favorite singers/actresses. You may remember Olivia Olson in Love Actually when she stole the show with her rendition of Mariah Carey’s All I want for Christmas Is You. Of course that was nearly 20 years ago. Today, she’s grown up and now voices main characters on two of Gigi’s favorite shows, Adventure Time and Phineas and Ferb along with continuing her own singing career.
Gigi was determined throughout 2021 to meet Olivia Olson. She wrote a couple of letters and prayed every night. Well why she didn’t get to meet Ms. Olson face to face, Ms. Olson was nice enough to send Abigail a personalized video wishing Gigi a Merry Christmas.
Abigail perseveres in ways I only wish I could. When she’s determined towards something, nothing can pull her away or convince her to give up.
Speaking of perseverance and not giving up, Gigi recently became a celebrity in her own right thanks to Jason Claybrook, the City of Grand Prairie and the inaugural Gigi’s Run.
Jason who is nearly as crazy as Gigi came to us a few months ago and suggested running for 24 hours — yes, 24 hours!!! — to bring awareness and raise funds for Playgrand Adventures. Playgrand Adventures is the coolest playground ever, designed for all kids, but especially for those that cannot use a normal playground. It has a cushioned ground so those that can crawl but not walk (e.g. Gigi), can hop out of their wheelchair and get around. It has swings that are big enough for larger “kids” but still offer harnesses for secure swinging. It even has a wheelchair swing and carousel allowing for everyone to enjoy the experience of a swing.
In the end Jason ran for a full 24 hours, 91 miles to be exact, and Gigi went with him for the first and last two. Over $7,500 was raised to expand and maintain, the best, coolest playground in the country. If you’re so inclined, please consider donating to this awesome place to make sure kids like Gigi have a place to play.
UPDATE (3/9/2022): Apparently the main donation page does not include the matching donations that are still coming in. Gigi’s Run has actually raised just over $15k.
As I’ve discussed the past few years, there are disconnected realities of being a special needs parent. Don’t get me wrong. I know it could have been much worse. And we are so blessed, so very blessed, to have Abigail here, when we were told by many she wasn’t going to be. However, this doesn’t remove the bittersweet reality of being a special needs parent. And if you haven’t experienced it, you can’t truly understand it.
This brings me to the poem, Welcome to Holland by Emily Perl Kingsley. She equates having a special needs child with planning a trip to Italy, but instead being diverted to Holland.
“The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.” And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss. But…if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things…about Holland.
But…if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things…about Holland.
— Emily Perl Kingsley -
So with that, I count the blessings. The awesome things that makes Abigail…Gigi…the only Gigi in the world. Her personality is amazing, almost always talkative, playful, and friendly (I said almost always. She is a teenager, after all). But perhaps I come home, exhausted after a tough day at work, and all I want to do is sit and chill for a bit. Then a little voice calls out, “Play with me, Daddy.” I have to remind myself, there’s no greater sound in the world. How many dads still have that with their daughters at 17?
That’s awesome, as are the hugs, good night prayers, and when I tell her my back hurts, I forget what day it is, or can’t remember which Full House episode we watched last (we watch it nearly every night)…
“That’s because you’re getting old, Daddy.”
Nice. Thanks, Gigi.
I’m not a huge country music fan, but there’s a song by Martina McBride called In My Daughter’s Eyes. I really suggest a listen, because it’s a beautiful song, especially for anyone with a daughter. But for me the part that always chokes me up is when it says:
“This miracle God gave to me;
Gives me strength when I am weak;
I find reason to believe; In my daughter’s eyes”.
I often hesitate to call Gigi, our miracle baby. I say that not because she isn’t a miracle, because she is. Instead, she reminds me that all children (and for that matter all of us) are miracles. Gigi surviving and becoming her own person is a miracle, but truthfully, the fact that so many children are born normally everyday is the true miracle. So please wish Abigail/Gigi, a super happy SEVENTEENTH birthday today, and blow her a big happy birthday kiss… Thanks for listening and Happy Birthday to Gigi!!!!
PREVIOUS FACEBOOK NOTES
at least the ones I can find ;)
Gigi’s Birthday #16
Gigi Birthday #15
Gigi Birthday #14
Gigi Birthday #13
Gigi Birthday #12
Gigi Birthday #10
Gigi Birthday #9
Gigi Birthday #8
Gigi Birthday #7
Gigi Birthday #5
Gigi Birthday #4
